Burns support groups

Burns Family Group

The Burns Family Group offers support and information for families who have a child that has experienced a burn or scald injury. We provide an environment where families with similar experiences can meet and support each other to help promote positive thinking. We host several ‘get togethers’ for families during the year including outings, picnics and seasonal parties. 

Each year there is usually a National Burns Camp for children and young people between the ages of 8–18. The camp provides a place for children to meet who have experienced a burn trauma and to help to develop their sense of independence and confidence along with often making lifelong friends. This year the camp will look a bit different - see below for details.

Fundraising: The Burns Family Group needs to raise money to give children the opportunity to attend camp each year. If you are willing to raise funds or have any fundraising ideas, please contact Annette Maynard (Health Play Specialist) on 020 3315 3707 or annette.maynard@chelwest.nhs.uk. Your support would be very much appreciated.

Website supporting families of children who have had a burn injury

Supportingchildrenwithburns.co.uk contains information to help support parents or carers of children and young people who have experienced a burn injury of any kind or size. When a burn injury happens to someone you care about it can be as distressing for you as it is for them. This website is not just for parents whose child has had a major burn, as we know that it can be a difficult experience regardless of how big the burn was, or whether or not a hospital stay or surgery was required. Other adults, such as grandparents, might also find this resource helpful.

Highlights of 2019

  • National Burns Camp took place on the 11–17 August at Grafham Water Activity Centre in Cambridgeshire for our 8–17 year olds

  • Alton Towers day trip on the 14 September for our older age group was great fun 

  • Our annual family weekend was on the 20–22 September at the Fire Service Rehabilitation Centre in Littlehampton, funded by the Children’s Burns Trust

  • The first Burn Experience Parent Conference: Supporting Parents & Carers - was held on the 19 October at the Blizard Institute, London E1

  • Jamboree took place on 25–28 October also at Grafham Water

Recent events

  • At the beginning of the year the family burns group attended an 'International Camp' in Egypt. The camp provided the children with the opportunity to gain their scuba diving open water license in a fun and positive environment. For some children it was their first time abroad, in the sea, snorkelling, going on a boat and SCUBA diving. It was inspiring for staff to witness the children overcome their individual challenges and make the most of these opportunities.

Upcoming events

Unfortunately, Covid-19 means there will be no National Burns Camp or Family Weekend this year, at least not in their usual format. Further details on the Jamboree in October half term will follow shortly. At present we are hoping that the Family Weekend will proceed as an online webinar but will confirm at a later date.

We have been invited to take part in the Summer Camp 2020 which is now the ‘Stay at Home Camp’ in conjunction with the Children's Burns Club at Broomfield on Saturday 8th August. It will be for all club members and their families and will be in your own homes.

You can be involved as much or as little as you like. For example, you can sleep in your normal bed or make a camp in the house or even camp outside if you have a garden It’s up to you! Throughout the day, when not doing club stuff, you can do other fun activities such as a family bike ride, a walk in the woods, playing board games and party games, baking and hiding painted rocks—we will hopefully post ideas/activity packs online.

The organised activities will depend on Government guidelines. Online numbers for some activities will be limited so please email me to confirm a place. If you do take part, we would love to see as many photos as possible throughout the day and we will add them to our social media streams.

Additionally, maybe you would like to send us a short video or message to tell us what you have enjoyed most whilst being part of the club. This might be family weekends, days out, a camp. 

Planned agenda

  • 10:15–10:30am: Welcome and hello from the CBC team and volunteers
  • 10:30–11am: Morning exercise with personal trainer (all ages)
  • 11:30am–12 noon: Magic show with Skittleman (all ages but aimed at 4–8)
  • 1–2pm: Art workshop with Megan and Beckie (all ages)
  • 3–4pm: Fun science Workshop (all ages but aimed at 7-12)
  • 6:30–7:30pm: Family gameshow with Skittleman (all but aimed at 11+)
  • 8–8:45pm: CBC fun quiz and goodnight from the CBC Team and club special evening song (all ages)

For more details please call Annette on Mars Ward 020 3315 3706 or email caw-tr.burnsfamilygroup@nhs.net.

London Area Burns Adult Support Group

The group meets roughly four times a year and is open to adults (16+) who have experienced a burn of any sort, at any age, and have been treated at any hospital. Although based in London we have members from Cambridge, Norfolk, Kent, Devon and Wales. We alternate between meeting to listen to speakers, have group discussions, and take part in social events. We are happy for people to bring family and friends with them.

This group offers a unique opportunity to not only get support from but also to give support to other burns survivors. People tell us that it can be really valuable to meet others with experiences of burns.

Venue news

Our friends at Changing Faces have kindly hosted us for many years at their offices off Tottenham Court Road in Central London but the time has come for them and therefore us to move. So our end of year gathering in December was our last one there.

Our new venue for 2020 is the Waterloo Action Centre just around the corner from Waterloo Station and across from the Old Vic Theatre. The times will be the same (6.30-8 PM) but the days of the week are different. For more details on the venue and how to get there go to their website at www.waterlooactioncentre.co.uk

We really hope you will be able to join us and look forward to seeing you there.

Recent events

  • On Monday 16 March a small group of us met at Waterloo Action Centre for the first time but concerns around Covid-19 meant that our numbers were very low. We therefore decided to postpone the planned talk by Specialist burns dietitian, Rachel Meynell, and hope she will be able to join us in future to talk about her role within the burns multi-disciplinary team and to answer your questions on burns and nutrition.

Upcoming events

  • Late June/early July - CANCELLED - after much thought it has been decided to cancel our summer event for this year in order to manage potential risks of Covid-19 infection, even though government guidelines would allow a limited number of us to gather outdoors. Really sorry about this but your safety is too important to us. We hope to do this next year instead. 
  • Tuesday 15 September 2020, 6:30–8pm TBA - watch this space for whether we are able to offer this in September
  • Monday 7 December 2020, 6:30–8pm—End-of-year party and hopefully this will be possible by then, if not we make consider something virtual instead.

For more information or to join our database please contact:

Lisa Williams
T: 020 3315 2504
E: lmwilliams@nhs.net

Dans Fund for Burns website and live chat forum for burn-injured adults

In 2018 Dan's Fund for Burns launched a new site adultburnsupportuk.org bringing together all of the most helpful resources and information on the aftercare help/support available to burn-injured adults in the UK and putting it on one site for easy access. In November 2018 they launched a weekly moderated Live Online Chat every Wednesday from 7:30–9pm (UK time) and I am pleased to say that this is still going strong. The ABSUK Live Chat has been developed to provide the opportunity for those affected by a burn injury to share their story and give and receive mutual support in a real-time, safe and private forum. Chat is now moderated by people with lived experience of burns and attracts an average of 6-8 participants every week. Funding has recently been secured to continue this until 2023 at least which is great news!

To participate in the Live Chat, users must be registered and logged in. If you would like to share your experiences or discuss any issues you may be having in relation to burns, please register ahead of time and then login on the night.

Coping with the stress of a traumatic incident

We give this leaflet to our patients and families who have experienced a traumatic event. It contains information about how people might be affected, common reactions, helpful hints including grounding, self care and potential sources of help.

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