Burns support groups

Burns Family Group

The Burns Family Group offers support and information for families who have a child that has experienced a burn or scald injury. We provide an environment where families with similar experiences can meet and support each other to help promote positive thinking. We host several ‘get togethers’ for families during the year including outings, picnics and seasonal parties. 

Each year there is a National Burns Camp for children and young people between the ages of 8–18. The camp provides a place for children to meet who have experienced a burn trauma and to help to develop their sense of independence and confidence along with often making lifelong friends.

Fundraising: The Burns Family Group needs to raise money to give children the opportunity to attend camp next year. If you are willing to raise funds or have any fundraising ideas, please contact Annette Maynard (Health Play Specialist) on 020 3315 3707 or annette.maynard@chelwest.nhs.uk. Your support would be very much appreciated.

New website launched to support families of children who have had a burn injury

Supportingchildrenwithburns.co.uk contains information to help support parents or carers of children and young people who have experienced a burn injury of any kind or size. When a burn injury happens to someone you care about it can be as distressing for you as it is for them. This website is not just for parents whose child has had a major burn, as we know that it can be a difficult experience regardless of how big the burn was, or whether or not a hospital stay or surgery was required. Other adults, such as grandparents, might also find this resource helpful.

Highlights of 2018

  • Jamboree—21–23 October. Cold weather didn’t stop the forty 8–12 year old children having fun—canoeing on the lake, mountain biking eight miles, mastering archery, ten-pin bowling and rock climbing. It was amazing to witness the level of keen participation of each child and the lack of complaints about the cold!

  • Our Christmas party was held at the hospital on Thursday 20 December. It was a joint party with children from other paediatric wards in the hospital and there was lots of fun and presents for all. 

Upcoming events

In January 2019 a new monthly baby and toddler group is starting up. The first session was on Friday 25 January in the CW+ MediCinema on the 3rd Floor (Lift Bank D) at Chelsea and Westminster Hospital. Please contact Annette to register your interest in this by calling 020 3315 3706.

London Area Burns Adult Support Group

The group meets roughly four times a year and is open to adults (16+) who have experienced a burn of any sort, at any age, and have been treated at any hospital. Although based in London we have members from Cambridge, Norfolk, Kent, Devon and Wales. We alternate between meeting to listen to speakers, have group discussions, and take part in social events. We are happy for people to bring family and friends with them.

This group offers a unique opportunity to not only get support from but also to give support to other burns survivors. People tell us that it can be really valuable to meet others with experiences of burns. Our friends at Changing Faces have agreed to host our events at their offices in London. If you would like to come along please get in touch using the contact details below.

We really hope you will be able to join us and look forward to seeing you there.

Recent events

  • At our 14 March meeting we enjoyed an interesting presentation and discussion  about recent developments and advances in scar management by Alice Egerton and Ashleigh Canov from the therapy team at Chelsea and Westminster.

Upcoming events

  • Saturday in late June/early July 2019—Summer outing
  • Thursday 19 September 2019, 6:30–8pm
  • Thursday 5 December 2019, 6:30–8pm—End-of-year party

For more information or to join our database please contact:

Lisa Williams
T: 020 3315 2504
E: lmwilliams@nhs.net

Dans Fund for Burns creates new website for burn-injured adults

In 2018 Dan's Fund for Burns launched a new site adultburnsupportuk.org bringing together all of the most helpful resources and information on the aftercare help/support available to burn-injured adults in the UK and putting it on one site for easy access. As of November 2018 they launched a weekly moderated Live Online Chat every Wednesday from 7:30–9pm (UK time). The ABSUK Live Chat has been developed to provide the opportunity for those affected by a burn injury to share their story and give and receive mutual support in a real-time, safe and private forum. To participate in the Live Chat, users must be registered and logged in. If you would like to share your experiences or discuss any issues you may be having in relation to burns, please register ahead of time and then login on the night.

Coping with the stress of a traumatic incident

We give this leaflet to our patients and families who have experienced a traumatic event. It contains information about how people might be affected, common reactions, helpful hints including grounding, self care and potential sources of help.

Feedback

Was this page useful to you?

Share this page