Burns support groups

Burns Family Group

The Burns Family Group offers support and information for families who have a child that has experienced a burn or scald injury. We provide an environment where families with similar experiences can meet and support each other to help promote positive thinking. We host several ‘get togethers’ for families during the year including outings, picnics and seasonal parties. 

Each year there is usually a National Burns Camp for children and young people between the ages of 8–18. The camp provides a place for children to meet who have experienced a burn injury and to help to develop their sense of independence and confidence along with often making lifelong friends. This year the camp will look a bit different—see below for details.

Fundraising: The Burns Family Group needs to raise money to give children the opportunity to attend camp each year. If you are willing to raise funds or have any fundraising ideas, please contact Annette Maynard (Health Play Specialist) on 020 3315 3707 or annette.maynard@chelwest.nhs.uk. Your support would be very much appreciated.

Website supporting families of children who have had a burn injury

Supportingchildrenwithburns.co.uk contains information to help support parents or carers of children and young people who have experienced a burn injury of any kind or size. When a burn injury happens to someone you care about it can be as distressing for you as it is for them. This website is not just for parents whose child has had a major burn, as we know that it can be a difficult experience regardless of how big the burn was, or whether or not a hospital stay or surgery was required. Other adults, such as grandparents, might also find this resource helpful.

Highlights of 2020

The year started off with our first ever Jamboree camp trip to Sharm el Sheikh in Egypt involving 10 teenagers, volunteers and leaders from several burns units. The teenagers gained their SCUBA diving licences in the wonderful Red Sea. They also went camel riding and quad biking in the Sinai desert. It was wonderful to witness how confidence, friendships and self-image developed within the individuals in the group.

A day trip to Harry Potter World took place in January. Children and their families spent the day exploring the studio and meeting other families that had gone through similar experiences on the burns unit. This was out last event before Covid-19 forced the cancellation of the National Burns Camp, our day trip to Alton towers trip and annual family weekend that normally takes place in September. We did still manage to offer the family weekend in virtual form with online sessions for parents and activities to do with the children at home.

Upcoming events

The virus means that we are still having to make changes to all of our future and regular organised activities and this will depend on Government guidelines. 

For more details please call Annette on Mars Ward 020 3315 3706 or email caw-tr.burnsfamilygroup@nhs.net.

London Area Burns Adult Support Group

The group meets roughly four times a year and is open to adults (16+) who have experienced a burn of any sort, at any age, and have been treated at any hospital. Although based in London we have members from Cambridge, Norfolk, Kent, Devon and Wales. We alternate between meeting to listen to speakers, have group discussions, and take part in social events. We are happy for people to bring family and friends with them.

This group offers a unique opportunity to not only get support from but also to give support to other burns survivors. People tell us that it can be really valuable to meet others with experiences of burns.

Venue news

Our new venue for 2020 was due to be the Waterloo Action Centre, just around the corner from Waterloo Station and across from the Old Vic Theatre. Unfortunately our first planned meeting of the year in March coincided with the arrival of Covid-19 and the start of the first lockdown. As such the meetings in the summer, September and the end of year get together were all moved online in order to comply with government guidelines on social gatherings.

We really hope you will be able to join us in person at some point in the future and look forward to seeing you then, however for now we will need to keep our meetings to virtual ones.

Upcoming events

The plan is to stick to roughly the same schedule of meeting every three months but they will be shorter (1 hour maximum) and from the comfort of your own home - so need to travel. 

  • Wednesday March 10 2021, 6:30–7:30pm—Spring meeting 
  • Tuesday June 22 2021, 6:30–7:30pm—Summer gathering
  • Wednesday 15 September 2021, 6:30–7:30pm—Autumn catch-up
  • Thursday 9 December 2021, 6:30–7:30pm—End-of-year party

For more information or to join our database please contact:

Lisa Williams
T: 020 3315 2504
E: lmwilliams@nhs.net

Dans Fund for Burns website and weekly live chat forum for burn-injured adults

In 2018 Dan's Fund for Burns launched a new site adultburnsupportuk.org bringing together all of the most helpful resources and information on the aftercare help/support available to burn-injured adults in the UK and putting it on one site for easy access. Shortly afterwards they launched a weekly moderated Live Online Chat every Wednesday from 7:30–9pm (UK time) and I am pleased to say that this is still going strong. The ABSUK Live Chat has been developed to provide the opportunity for those affected by a burn injury to share their story and give and receive mutual support in a real-time, safe and private forum. Chat is now moderated by people with lived experience of burns and attracts an average of 6-8 participants every week. Funding has recently been secured to continue this until 2023 at least which is great news!

To participate in the Live Chat, users must be registered and logged in. If you would like to share your experiences or discuss any issues you may be having in relation to burns, please register ahead of time and then login on the night.

Coping with the stress of a traumatic incident

We give this leaflet to our patients and families who have experienced a traumatic event. It contains information about how people might be affected, common reactions, helpful hints including grounding, self care and potential sources of help.

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