Burns support groups

Burns Family Group

The Burns Family Group offers support and information for families who have a child that has experienced a burn or scald injury. We provide an environment where families with similar experiences can meet and support each other to help promote positive thinking. We host several ‘get togethers’ for families during the year including outings, picnics and seasonal parties. 

Each year there is a National Burns Camp for children and young people between the ages of 8–18. The camp provides a place for children to meet who have experienced a burn trauma and to help to develop their sense of independence and confidence along with often making lifelong friends.

Fundraising: The Burns Family Group needs to raise money to give children the opportunity to attend camp next year. If you are willing to raise funds or have any fundraising ideas, please contact Annette Maynard (Health Play Specialist) on 020 3315 3707 or annette.maynard@chelwest.nhs.uk. Your support would be very much appreciated.

New website launched to support families of children who have had a burn injury

Supportingchildrenwithburns.co.uk contains information to help support parents or carers of children and young people who have experienced a burn injury of any kind or size. When a burn injury happens to someone you care about it can be as distressing for you as it is for them. This website is not just for parents whose child has had a major burn, as we know that it can be a difficult experience regardless of how big the burn was, or whether or not a hospital stay or surgery was required. Other adults, such as grandparents, might also find this resource helpful.

Highlights of 2018

  • Jamboree—21–23 October. Cold weather didn’t stop the forty 8–12 year old children having fun—canoeing on the lake, mountain biking eight miles, mastering archery, ten-pin bowling and rock climbing. It was amazing to witness the level of keen participation of each child and the lack of complaints about the cold!

  • Our Christmas party was held at the hospital on Thursday 20 December. It was a joint party with children from other paediatric wards in the hospital and there was lots of fun and presents for all. 

Upcoming events

National Burns Camp is taking place on the 11-17th August at Grafham Water Activity Centre in Cambridgeshire for 8-17 years old. This is a very busy week that includes water sports as well as dry land activities.

There is a day trip to Alton Towers on the 14th September. This is for our older age group of 12-17 year olds and is a very fun day.

The family weekend this year is on the 20th-22nd September and is a residential weekend in Littlehampton at the Fire Service Rehabilitation Centre. This is funded by the Children’s Burns Trust .This weekend offers therapeutic workshops and planned activities for the children as well giving the parents the opportunities to support each other. Chelsea and Westminster is one of four hospitals that attend.

Burn Experience Parent Conference: Supporting Parents & Carers - The Children’s Burns Trust and London and South East Burns Network are holding their first ever national conference for parents and carers of children with a burn injury on Saturday, 19 October 2019 from 9:45 - 17:30 at the Blizard Institute, 4 Newark Street, London E1 2AT. Guest speakers will include psychologists, surgeons, physiotherapists and occupational therapists. Adult burn survivors and parents/carers of burn survivors from across the UK will also talk about their personal experiences of a burn injury. The conference is being held at open to all parents/carers of a child with a burn injury across the UK. There may also be some professionals who are interested in attending the day. Register here

The National Jamboree takes place on the 25th-28th October, also at Grafham Water Activity Centre. This is a fantastic weekend for children aged 8-12 years who enjoy fun activities and is their first time away from home for some.

London Area Burns Adult Support Group

The group meets roughly four times a year and is open to adults (16+) who have experienced a burn of any sort, at any age, and have been treated at any hospital. Although based in London we have members from Cambridge, Norfolk, Kent, Devon and Wales. We alternate between meeting to listen to speakers, have group discussions, and take part in social events. We are happy for people to bring family and friends with them.

This group offers a unique opportunity to not only get support from but also to give support to other burns survivors. People tell us that it can be really valuable to meet others with experiences of burns. Our friends at Changing Faces have agreed to host our events at their offices in London. If you would like to come along please get in touch using the contact details below.

We really hope you will be able to join us and look forward to seeing you there.

Recent events

  • On Saturday 1st June the group enjoyed a private guided tour of Little Venice with Claire from London Walks. We had great luck with the weather and an early start meant we had most of the streets to ourselves to learn about the buildings, people and history of the area. Everyone gave the idea of a guided tour the thumbs up and we could consider something similar again next summer. Thank you to everyone who came along.

Upcoming events

  • Thursday 19 September 2019, 6:30–8pm -This time we will be welcoming Sarah Green, Charity Director of the Katie Piper Foundation, who is going to join us to talk about their brand new rehabilitation centre based in the north which recently opened its doors and is now accepting patients for a variety of treatments and support. The centre is the only one of its kind in the UK and is not just for those with recent injuries. It will be interesting to hear about the services they can provide and what they have been able to do for burns survivors already. 
  • Thursday 5 December 2019, 6:30–8pm—End-of-year party
  • 2020 dates coming soon

For more information or to join our database please contact:

Lisa Williams
T: 020 3315 2504
E: lmwilliams@nhs.net

Dans Fund for Burns creates new website for burn-injured adults

In 2018 Dan's Fund for Burns launched a new site adultburnsupportuk.org bringing together all of the most helpful resources and information on the aftercare help/support available to burn-injured adults in the UK and putting it on one site for easy access. As of November 2018 they launched a weekly moderated Live Online Chat every Wednesday from 7:30–9pm (UK time). The ABSUK Live Chat has been developed to provide the opportunity for those affected by a burn injury to share their story and give and receive mutual support in a real-time, safe and private forum. To participate in the Live Chat, users must be registered and logged in. If you would like to share your experiences or discuss any issues you may be having in relation to burns, please register ahead of time and then login on the night.

Coping with the stress of a traumatic incident

We give this leaflet to our patients and families who have experienced a traumatic event. It contains information about how people might be affected, common reactions, helpful hints including grounding, self care and potential sources of help.

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